The Unravelings of a Looneyman

Hello!

I am doing OK. Not as great as I would like. I have been increasing my activity level hoping to get my “normal” life back when I go back to the Dr on the 22nd. It is not going as well as I would like. Would not say it is going bad just not as fabulous as I would like.

With the meds the Neurologist has me on it has mitigated about 90% of  my headaches and other neurological symptoms. However that was if I only stay about at a 25% normal activity level. When I increase my activity level to 50% to 75% of normal activity the meds effectiveness drops to about 50%! So I am going to call tomorrow and schedule a visit with my Neurologist this week instead of waiting for another almost 2 weeks.

Not sure what he will say but I will post and update!

Hugs to all!!

Gene, aka aksewinman

Hello All or no one! (Whichever it may be!)

The doctor has put me on new meds now for a month. It has mitigated most of the headaches so my body can heal itself.

The beginning of November my doctor referred me to a neurologist. The neurologist said that my body had gotten stuck in a catch 22. He said that the meningitis causes the headaches and other symptoms which then sidetracks my body into dealing with those instead of the swelling around my brain and spinal column. And because it is not getting rid of the swelling it is just causing more symptoms.

The new meds leave me feeling like trash most of the time. However I am willing to put up with that so my body can get rid of the meningitis.

When I feel up to it I sew a bit.

This experience has changed my outlook on life. I now consider any day that I am above the ground to be a good day!!! I keep reminding myself that their are others that are way worse off than I am!!!!

Go Gene Go!!!!

Hello all,

I am doing mostly bettter hoping to get this recovery out of the way! I want to get my normal life back!!

I am attaching a picture of me doing my 2nd marathon in October of last year in my purple rasta wig!!! Go Team!!!

I just came acrossed this picture of me doing my first marathon! Don’t I look fabulous!!! LOL

I have done both of my marathons for Team in Training.

I am doing a bit better. Still a rollercoaster ride. Can go from not bad to a huge headache and feeling like I was hit by a bus in 10 minutes!

I was able to make 2 vests and a floor length embossed velveteen coat!! It was beautiful! I will post a picture of the coat when I get one. I am emailing the person I made it for to see if I can get a photo. Unfortunately in my Vicodin haze I did not take one. I may make myself a version of it.

Hugs to off will post more later.

Gene

I am doing OKish. Woke up today with the worst headache since the hospital. It took until around 1 pm for it to calm down.

My exciting news is I got my update to my Bernina Artista Designer Plus Version 6!!!! So far I have had lots of fun playing with it. Bernina has out done themselves again. I will post more on it later after I have played with it more!!